Medically Fragile

What makes me cry as a caregiver?

What makes me cry as a caregiver?

What makes me cry as a caregiver is a list that keeps getting longer. Think of it as a reverse bucket list. But really, what makes me cry as a caregiver can be boiled down to two interconnected truths.

The Day Before and The Day After Life Changing News

The Day Before and The Day After Life Changing News

News of my daughter can be especially hard for me as I have poured my heart and soul into taking care of her. Yet, God should be my ultimate pursuit. If I chase after him when things are falling apart, everything else should fall into place.

4 Ways to Calm Your Mind When You Know Too Much

4 Ways to Calm Your Mind When You Know Too Much

God has used what I have learned about and experienced with special needs and disabilities to great good. He's empowered me to write books to encourage and equip parents, provide special needs ministry training, facilitate support groups, and more. But sometimes that same knowledge and experience results in thought patterns that lead to excessive and obsessive worry that steals my joy.

3 Lessons I've Learned in 20 Years of Marriage

3 Lessons I've Learned in 20 Years of Marriage

When reflecting on our wedding day, I remember the joy and hope in those two young people. The future was ahead of us. Many plans and dreams filled our minds, but neither of us could imagine the reality to come.

Empowering Kids with Disabilities, Part Two: The Need for Love and Belonging

Empowering Kids with Disabilities, Part Two: The Need for Love and Belonging

In part two of Empowering Kids with Disabilities, Jolene Philo focuses on love and belonging. What can you do or change so your children with disabilities have more opportunities to feel loved and increase their sense of belonging?