Whatever your experience with the game of poker, there is a lot about the game that is very much like additional needs parenting.
Sometimes we only learn our lessons the hard way. There is truth in consequences. With autism or developmental disability, however, it can be hard to know what is reasonable to expect from our children. How much is too much? How much is too little? When do we make legitimate allowances for a disability and when do we not?
The problem I seem to have in trials is that I want them over with quickly. The end of the trial seems to be the focus of my prayers. Then one day, a friend prayed with me in a way I never had.
Whether at the doctor’s office, with our child’s therapy team, in the classroom for an IEP meeting, many times we are just not considered experts on our children. We are relegated to being just a bystander while the real “experts” make proclamations over our children. While they may be truthful many times, they still don’t define our children totally. It is in those moments that we must step in and be the voice in the gap between the understanding of the experts and the knowing of our hearts, and speak out the value of our kids that only we can communicate as parents.
I know the blessings of being a special-needs siblings, but I also know the challenges. That’s why I’m sharing this list of of seven phrases every special-needs siblings needs to hear.
There are dozens of things we’ve incorporated into our household, lifestyle and daily rhythms over the years that have helped maximize my “autopilot mode.” Let’s be real. Autopilot is a form of rest when it comes to caregiving. The “efficiency geek” in me seeks out routines and conveniences that allow me to slide through the rigors of caregiving with as much ease as possible. Today, I’m sharing some of the much-appreciated amenities at our house.