dignity

He Turns 40; We Turned the Unexpected Journey Into a Spirit of Adventure!

He Turns 40; We Turned the Unexpected Journey Into a Spirit of Adventure!

A spirit of adventure has helped us care for Joey, and sustain us these past 40 years, and hopefully into future years. We chose to make the journey an adventure something like this, both from and to these five things.

When The Doctor Can't Fix Your Child

When The Doctor Can't Fix Your Child

No one can prepare you for what it’s like to be a witness of the continued struggle in your child, just to survive. There’s no chapter on that in the pregnancy books. There’s no guidebook for how to be a parent of the suffering. Or is there?

4 Caregiving Lessons Mom Taught Me

4 Caregiving Lessons Mom Taught Me

In our search for ways to relieve my Mom’s loneliness, I learned four effective strategies. Their effectiveness makes me want to go back to my days as mom to a child with special needs and give them a try with him, too. Since that's not going to happen until somebody works the kinks out of time travel, I'll pass the caregiving lessons on to you.