Down syndrome

Seasons of Growth

Seasons of Growth

Over the years, I have been through multiple seasons of planting and harvesting skills with my daughter. My daughter is now entering adulthood with disabilities. There are still skills that she needs to develop to make her life easier. The learning does not stop as she ages, however, the pressure I put on myself all of those years is gone. I don’t need to fix issues. I simply need to support her through them. Evana Sandusky writes on her daughter’s growth through the years and likens it to planting seeds and yielding the harvest.

March 21st, World Down Syndrome Day

March 21st, World Down Syndrome Day

Evana Sandusky shares about her daughter Jaycee, who has Down syndrome, but is so much more than what people often assume. Happy world Down syndrome day!

How My Daughter Cared for Me

How My Daughter Cared for Me

As soon as I woke up, my body revolted. My hip somehow fell out of place again, making each movement painful. It’s a bizarre situation for a caregiver to find herself in. I am not supposed to be the one who needs help. For me, caring and giving happens regardless of how I feel.  As Jaycee grows, I see now how we can help each other. 

Seeing Beyond the Down Syndrome

Seeing Beyond the Down Syndrome

Jaycee is a person with Down syndrome. Not everyone with this diagnosis will be exactly like her. For World Down syndrome Day, I encourage you to get to know those around you who have Down syndrome. You may be missing out on an opportunity to meet a person who can enrich your life with friendship and love.

4 Irritating Things I am Thankful for this Year

4 Irritating Things I am Thankful for this Year

Thanksgiving reminds me to be grateful in all seasons of life. Over the years, there have been seasons when I have been overwhelmed and frustrated with the daily medical interventions. God gently reminded me that the very things that sometimes feel irritating are the things I should be grateful to have for my girl.