special needs

The Struggle with Special Events

The Struggle with Special Events

For families like mine, special events are not always easy. It may look like an ordinary entrance to anyone else, but for us, it is one brave step after another.

Things We Don’t Have to Worry About

Things We Don’t Have to Worry About

Often, when we talk about our children with special needs, we talk about their limitations, challenges, and the things they have accomplished. It’s always a joy to share the victories in the midst of what is often a lot of work, scheduling, and coordinating a lot of people to help make it happen. But as parents of Joey who is 38, we are also very aware that while we have a lot we need to do with and for him, there are also a lot of things we’ve never had to worry about or be concerned about.

Different Trenches, Same Battle

Different Trenches, Same Battle

There is a certain level of comfort and safety in a trench. It’s not really the place you want to be, but you have some safety and comfort knowing you are protected. We have friends that are in trenches right next to us, so we all feel we understand what the other is going through. We see when there is a battle brewing, and sometimes we even hop into each other’s trenches! We know we’re on a level field of challenge, and being together helps us to get through the battle before us. We can’t be in the same trench and work against one another.

Balance is a Myth

Balance is a Myth

Even though there is no such thing as balance, there is such a thing as balancing, so that we can honor the fact that there is a time for everything. Balancing requires us to work smart, understand and create time for our priorities, and practice peace.