Jolene Philo gives 10 vacation planning tips for families with special needs! Jolene Philo will be speaking at Disability & the Church 2024 in Orlando, FL May 1-3! Go to www.keyministry.org/datc2024 to register now.
Like a new outfit that looks crisp and sharp or an old outfit that is so worn out it’s comfy and we wear it all the time….is often how we wear the banner of the special needs journey. How does it look on us? On you? Is our attire crisp and sharp or rather worn out? Cindi Ferrini writes on how YOU wear special needs and caregiving.
There is a group that many churches simply do not see and are therefore missing a great opportunity for ministry. That group is special needs dads. Guys, like me, who are caring for individuals with disabilities/special needs. This is an incredible group of men! Steve Chatman will be speaking at Disability & the Church 2024 in Orlando, FL May 1-3. Go to www.keyministry.org/datc2024 to register now.
Over the years, I have been through multiple seasons of planting and harvesting skills with my daughter. My daughter is now entering adulthood with disabilities. There are still skills that she needs to develop to make her life easier. The learning does not stop as she ages, however, the pressure I put on myself all of those years is gone. I don’t need to fix issues. I simply need to support her through them. Evana Sandusky writes on her daughter’s growth through the years and likens it to planting seeds and yielding the harvest.
“How do I teach my kids to interact with people who have disabilities?” Jolene Philo gives 7 tips on how to teach your kids how to interact with people who have disabilities. These tips are geared for kids, but they can be adapted for adults who act uncomfortable around anyone with disabilities and special needs––kids, adults, and senior citizens.
Whether we’re talking about our marriage relationship or relationships with friends, acquaintances or someone we’ve just met, I believe we have mastered the art of monologue and have no real idea how to have a genuinely sincere conversation. Here are ideas to help us to learn the “art of conversation” rather than the monotonous monologue we’re used to enduring or offering.
For those of us who are married for better or worse, we’re in it to win it. That’s the easy part because it’s just saying the words, but in real life, we know that many of us in the world and journey of special needs need real help to make it to the finish line. Those doing this alone without a partner to help cope know full well that this journey isn’t for the faint of heart. Whether married or single parenting special needs, you need help!
Our son with special needs is 38. Joe and I have been vastly helped by the encouragement from each other, and friends and family as they’ve cheered us on in the journey. We know we all need and can use encouragement on a daily basis. For those of us who are married, we can get that encouragement from our spouse. For those in the single lane of this journey, that encouragement must come from others like family, friends, even co-workers and neighbors to make it to the finish line!
We have also had mentors along the way who’ve been great to tap into for their expertise. If you have disappointments and times of discouragement in your marriage or in this journey on your own, you might just need someone to mentor you to the next step. Finding someone you look up to and who is a few steps ahead of you might be all you need to get a right frame of mind and a new place to set your foot firmly. We have appreciated mentorship from others when we needed it.
We’ve even had several counseling sessions, at a time when we wondered if we were getting this special needs marriage and parenting piece in the right place of a million piece puzzle. For any of us having difficulty working through the worse parts of our vows that are dysfunctional and devastating, or for the single parent who just can’t seem to make it day to day where they are, don’t hesitate to see a counselor.
An encourager is one who is beside you cheering you on to the best you can be!
A mentor should help you:
Figure out and navigate challenges, such as money issues or raising children
Get out of a rut if you’re feeling stuck
Learn to communicate better in simple ways
Distinguish between disappointments versus dysfunction that needs counseling.
A counselor should help you:
Understand how you got into these dysfunctions
Identify and navigate help for mental disorders, depression, etc.
Work through various abuses—drug, alcohol, emotional, marital, etc.
Move forward
Have accountability in the learning and growing process.
This is a partial list of what we cover more fully in our new book Love All-Ways: Embracing Marriage Together on the Special Needs Journey. Whether married or a single parent, there is a lot to learn as we navigate getting help through encouragement, mentoring, or counseling. We should never hesitate to get whatever help we need. The special needs journey is often long and hard, but made easier and smoother when we have others helping us along the way. We should never be ashamed or embarrassed to ask for help when we know we need it.
Dr. Joe and Cindi Ferrini are authors, speakers, and bloggers for several blogging sites on family and special needs. They speak nationally for FamilyLife Weekend To Remember Marriage Get-a-Ways, authored Unexpected Journey – When Special Needs Change our Course, and have been interviewed on Focus on the Family, FamilyLife, and various other radio and television venues. Connect with them at www.cindiferrini.com and social media at: www.facebook.com/cindi.ferrini, www.facebook.com/UnexpectedJourney/, www.facebook.com/MyMarriageMatters/
ANNOUNCING their newest book: Love All-Ways: Embracing Marriage Together on the Special Needs Journey is available through their website!
Often, when we talk about our children with special needs, we talk about their limitations, challenges, and the things they have accomplished. It’s always a joy to share the victories in the midst of what is often a lot of work, scheduling, and coordinating a lot of people to help make it happen. But as parents of Joey who is 38, we are also very aware that while we have a lot we need to do with and for him, there are also a lot of things we’ve never had to worry about or be concerned about.
