As a husband and a father, I implore you to take time for self-care now. Don’t wait until it is too late. Your family and your child need you there for the long term. Please take that time, even if it is only five minutes a day.
The next song in our Post Tenebras Lux series is a song by Matt Papa and Matt Boswell called "Christ the Sure and Steady Anchor." Listening for the first time, I couldn't help but think of how our recent struggles with the effects of autism made me feel like a tattered boat with torn sails, like the first verse describes.
Prayer is great, and always the first thing we should do, but that is the prayer part. How might the care part look? It might be something simple.
When I think back on the hardest days and years of our son’s journey, I recall wanting God’s help, expecting His help, waiting for His help, while all the time trying to solve all the problems and carry all the burdens on my own. I don’t remember asking for His help or moving to Him for His help and shelter until I completely exhausted myself and physically broke.
This morning, as I planned for the day, I saw that my son’s physical therapist would be coming to the house this afternoon. This morning there was a moment when I felt like a failure, but that feeling quickly passed. I remembered how several years back, that feeling often lingered with me for days at a time, but not anymore.
Except for posters on 9/11 saying “We Will Remember,” life has returned to normal for those who were not directly impacted. For those of us with a child impacted by disability, there is another date that is cemented in our minds. We each have our own twin towers moment, that moment when our world came crashing down.