What DO you do when a child works harder to escape a room than he does work the puzzles at the table? How can you possibly know where the boundaries should be with a child who inherently has none? Where is the line between nurturing and structure? While there aren’t clear answers to these questions, there IS clear theology about our family’s place in the Body of Christ. Sherri Wirt writes a short devotional for special needs parents that feel they don’t fit at church.
Jolene Philo gives 10 vacation planning tips for families with special needs! Jolene Philo will be speaking at Disability & the Church 2024 in Orlando, FL May 1-3! Go to www.keyministry.org/datc2024 to register now.
Like a new outfit that looks crisp and sharp or an old outfit that is so worn out it’s comfy and we wear it all the time….is often how we wear the banner of the special needs journey. How does it look on us? On you? Is our attire crisp and sharp or rather worn out? Cindi Ferrini writes on how YOU wear special needs and caregiving.
There is a group that many churches simply do not see and are therefore missing a great opportunity for ministry. That group is special needs dads. Guys, like me, who are caring for individuals with disabilities/special needs. This is an incredible group of men! Steve Chatman will be speaking at Disability & the Church 2024 in Orlando, FL May 1-3. Go to www.keyministry.org/datc2024 to register now.
Over the years, I have been through multiple seasons of planting and harvesting skills with my daughter. My daughter is now entering adulthood with disabilities. There are still skills that she needs to develop to make her life easier. The learning does not stop as she ages, however, the pressure I put on myself all of those years is gone. I don’t need to fix issues. I simply need to support her through them. Evana Sandusky writes on her daughter’s growth through the years and likens it to planting seeds and yielding the harvest.
Through all the unexpected twists on my motherhood journey, I am grateful for my relationship with God. I have needed wisdom and help that cannot be found in friends, articles, or books. My relationship with God has been vital in keeping me focused and able to face each new challenge while rearing my daughter with special needs.
As soon as I woke up, my body revolted. My hip somehow fell out of place again, making each movement painful. It’s a bizarre situation for a caregiver to find herself in. I am not supposed to be the one who needs help. For me, caring and giving happens regardless of how I feel. As Jaycee grows, I see now how we can help each other.
Jaycee is a person with Down syndrome. Not everyone with this diagnosis will be exactly like her. For World Down syndrome Day, I encourage you to get to know those around you who have Down syndrome. You may be missing out on an opportunity to meet a person who can enrich your life with friendship and love.
