What DO you do when a child works harder to escape a room than he does work the puzzles at the table? How can you possibly know where the boundaries should be with a child who inherently has none? Where is the line between nurturing and structure? While there aren’t clear answers to these questions, there IS clear theology about our family’s place in the Body of Christ. Sherri Wirt writes a short devotional for special needs parents that feel they don’t fit at church.
Jolene Philo gives 10 vacation planning tips for families with special needs! Jolene Philo will be speaking at Disability & the Church 2024 in Orlando, FL May 1-3! Go to www.keyministry.org/datc2024 to register now.
Like a new outfit that looks crisp and sharp or an old outfit that is so worn out it’s comfy and we wear it all the time….is often how we wear the banner of the special needs journey. How does it look on us? On you? Is our attire crisp and sharp or rather worn out? Cindi Ferrini writes on how YOU wear special needs and caregiving.
There is a group that many churches simply do not see and are therefore missing a great opportunity for ministry. That group is special needs dads. Guys, like me, who are caring for individuals with disabilities/special needs. This is an incredible group of men! Steve Chatman will be speaking at Disability & the Church 2024 in Orlando, FL May 1-3. Go to www.keyministry.org/datc2024 to register now.
Over the years, I have been through multiple seasons of planting and harvesting skills with my daughter. My daughter is now entering adulthood with disabilities. There are still skills that she needs to develop to make her life easier. The learning does not stop as she ages, however, the pressure I put on myself all of those years is gone. I don’t need to fix issues. I simply need to support her through them. Evana Sandusky writes on her daughter’s growth through the years and likens it to planting seeds and yielding the harvest.
While recently listening to an afternoon radio program about “worry,” the woman being interviewed was asked, “I know God says not to worry, but how do we NOT worry?” When we worry, we don’t trust that God can make a way for us. For many of us, we’ve had years to learn this, and are still learning. What’s the key?
My son James has his hair cut about four or five times a year. As long as we keep to a routine, all is fine. Any change would be enormously difficult for him, and therefore for us. The reason I share James’ haircut story is to illustrate that routine and familiarity are fundamentally core to the coping mechanisms of many children and young people with additional needs. And just like the routines followed by special needs families, churches have opportunities to make similar choices regarding children and young people with disabilities in church-based work as well.
The time quarantined with 8 children, including five teenagers and one child with profound special needs, has been intense. Prior to the worldwide pandemic, my husband Ryan and I successfully prioritized self-care. We understand how fragile our mental health can become in stressful circumstances, having each experienced bouts of overwhelm, PTSD, and anxiety. May is Mental Health Awareness month. Here are ten routines we have incorporated to preserve the integrity of our well-being that may be helpful to others as well.
Guest blogger Sarah Lango shares honestly about her anxiety and fear in parenting her daughter with special needs. She writes, “As I wrestled with God on how to handle this anxiety I found myself face to face with some basic Biblical truth. I didn’t trust God with my child.” Do you relate? Read more of their story in today’s post.
Except for posters on 9/11 saying “We Will Remember,” life has returned to normal for those who were not directly impacted. For those of us with a child impacted by disability, there is another date that is cemented in our minds. We each have our own twin towers moment, that moment when our world came crashing down.
